National Protocol for Diagnosis and Care

(PNDS-Protocole National de Diagnostic et de Soin)

The National Protocol for Diagnosis and Care (PNDS), developed as part of the French Rare Diseases Initiative, published a diagnostic reference guide, available to doctors and the public on the Internet. The publication was issued under the approval of the French National Authority for Health (HAS- Haute Autorité de Santé).

After extensive work with the CERVCO, in collaboration with the HAS organization and CADASIL France Association, the “PNDS for CADASIL” publication was validated and posted online on the HAS website.

You can access it on the HAS (Haute Autorité de Santé) website:

http://www.has-sante.fr/portail/jcms/c_1069510/

There are three levels of information. Here are the links to access this information:

• ALD n ° 15 - PNDS for Cadasil

http://www.has-sante.fr/portail/upload/docs/application/pdf/2011-07/ald_n15_-_pnds_sur_cadasil.pdf

• ALD No. 15 - List of medical treatments and services for Cadasil patients  

http://www.has-sante.fr/portail/upload/docs/application/pdf/2011-07/ald_n15_-_liste_des_actes_et_prestations_sur_cadasil.pdf

• ALD No. 15 – Quick Guide about CADASIL for general practitioners

http://www.has-sante.fr/portail/upload/docs/application/pdf/2011-07/ald_n15_-_synthese_medecin_traitant_sur_cadasil.pdf

We encourage patients and their families to invite their doctors and neurologists to visit the HAS website. This site hosts the most complete and up-to-date information in order to provide correct diagnosis and best guidelines on patient care.

Patients and families can download these documents for distribution to the medical community. ♦