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Webmaster - Infos
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Our association - Our partners |
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Our partners
►Le CERVCO (Centre de Référence pour les maladies rares des Vaisseaux du Cerveau et de l'Oeil / Translation : Reference Center for rare diseases of the Brain and the Eye Vessels)
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Head office:
Hôpital Lariboisière
Service de Neurologie
2 rue Ambroise Paré
F75010 PARIS - France
http://www.cervco.fr
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In France, the CERVCO is the reference center for CADASIL. It was created in 2007 within the national program for rare diseases. Its missions consist in defining rules for the diagnostic, follow-up, treatment of diseases belonging to its scope, as well as coordinating Research programs, medical networks, nationwide information of medical professionals, patients and families.
►L'Alliance maladies rares
The Alliance maladies rares is a federation grouping 193 associations, representing 2000 rare diseases.
Note: Cadasil France is affiliated to the Alliance maladies rares.
►Orphanet
Orphanet is the european portal for rare diseases.
Note: Cadasil France website is hosted on Orphanet servers, with sponsorship of la Fondation Groupama pour la Santé.
► Eurordis
www.eurordis.org
An european Federation grouping more than 380 associations of patients and national alliances, being the voice of the 30 millions patients affected by the rare diseases throughout Europe.
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Creation date : 18/03/2009 @ 10:24
Last update : 03/01/2016 @ 21:43
Category : Our association
Page read 14524 times
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